Behind every smile there’s an extraordinary caregiver
We provide support, practical guidance, community, and resources for cleft-affected families.
Created by parents, for parents.
IT’S LOVELY TO MEET YOU
I am Marina and my son was born with a complete unilateral cleft lip and palate. On my son’s 2nd birthday, we felt proud — the feeding challenges, NAM, surgeries — phew, we had been through so much as a family. But we also felt a tinge of disappointment. Despite extensive research, we frequently felt like we were on our back foot — often finding the right information a week or two after we needed it. We spent so much of our son’s early years researching and problem solving — rather than enjoying this precious time.
My hope in creating this space is to equip future cleft parents with the practical parenting tips & tricks involved in raising a cleft baby, with the goal of helping babies and their families thrive.
Behind every cleft smile is a beautiful story…
& an extraordinary caregiver.
If you're reading this, there's a good chance you recently learned your baby has a cleft. Welcome! I’m glad you found us.
I built Behind the Smile because when I got our diagnosis, I couldn't find what I was looking for. There was clinical information, and there were stories on social media, but there wasn't much in between -- no practical, parent-built guide that walked me through what was coming. So I made one.
Behind the Smile is a small resource hub created by a fellow cleft parent, for parents at the beginning of the journey. It's not medical advice, and it's not a replacement for your care team. It's the parenting resource I wish I'd had when we got the news.
I hope it helps you along your journey.