The Early Cleft Years Course: Practical Guidance from Diagnosis to 24 Months

A trusted guide for caregivers of cleft-affected babies - offering practical tips and a clear roadmap from diagnosis through 2 years. The 8-module course covers everything from feeding to surgery prep and post-op care, with research-backed insights and real-life advice. The Early Cleft Years Course is offered free of charge by Behind the Smile, a 501(c)(3) nonprofit dedicated to helping cleft families feel prepared, connected, and supported.

THIS COURSE WILL WALK YOU THROUGH:

  • Your family's journey from diagnosis to 24 months — What to expect throughout the journey to help you feel prepared.

  • Firsthand learnings from other parents — Honest lessons, real-life insights, and "wish I'd known" reflections from fellow cleft parents.

  • Practical prep tips for baby's arrival — From must-have baby gear to hospital bag checklists & navigating the first days at home.

  • Feeding & soothing parenting tips — Trusted advice on bottles, pacifiers, introducing solids, and open-cup transitions for cleft-affected babies.

  • Navigating pre-surgical care & surgery — Understanding taping, NAMs, surgical timing, and how to support your baby’s healing.

  • Additional insights — High-level overview of neonatal teeth, reflux, ears, speech, sleep apnea, dry lips, etc.

What’s Inside

MODULE 1

Resources, Conversations, & Support

This module provides general information, an extensive list of resources, ideas on how to prepare siblings, ideas for navigating difficult conversations, & more.

MODULE 2

Prenatal Apts, Birth, Year 1-2 Overview

This module addresses the many questions parents face after learning the diagnosis and provides info on what you can expect in the first years.

MODULE 3

How to Prepare

This module provides a high-level overview of how to prepare for your baby’s arrival.

MODULE 4

Infant Milk & Pacifiers

This module reviews the cleft bottles and many of the questions parents face about feeding their baby and navigating pacifiers.

MODULE 5

Solids & Cups

This module provides an overview of introducing solids and provides tips & tricks for transitioning to cups, including straws.

MODULE 6

Pre-surgical Interventions

This module provides an overview of the pre-surgical interventions and outlines tips and tricks for managing each one. 

MODULE 7

Surgery

This module shares tips and tricks for navigating lip and palate repair surgery.

MODULE 8

Additional Topics

This module provides information on Teeth, Reflux, Ears, Speech, Sleep Apnea, Dry Lips.

Frequently Asked Questions

What Fellow Parents are Saying

  • "Behind the Smile made me feel so much less stressed and lost. The course helped me know what to expect instead of feeling alone and clueless. The sample questions at the end of each module were a lifesaver - I used them with doctors through the whole first 2 years of my son's life and they made me feel confident walking into appointments. I’m so glad I took the course."

    — Fellow Cleft Parent

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